NEWS in 2023
General New/Conference News/Research News/Charity News for 2023
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News Items 2023
It is important that MPs here what is being done rather than a santised or biased view of
activity related to research into ME.
We have supplied an extract from input to the DHSC Delivery Plan Working Group so that MPs can know of the development and status of the centre in Norwich Research Park.
Instead of publishing discriminatory comments about ME in their document the DHSC
ought to be defending patients.
In our response to the
DHSC Interim Delivery Plan (here) –
we suggested that the DHSC could instead use a statement to counter the nonsensical misinformation by
using extracts from their very own interim report.
When we talk of research into ME then we need to ensure the best and standardised tools are available - for diagnosis
and for measuring outcomes.
A new standard for outcome measure has been created and here is the description in preprint.
IiMER suggested to Professor Sommerfelt that FUNCAP, developed by him and Trude Schei, could be used in the research at the centre in Norwich - and so this EMERG collaboration began and this document is a culmination of that and this will be used in the research at Quadram Institute and, we hope, in other EMERG member institutes.