All Party Parliamentary Group for ME
Submission for APPG November 15 2023
Invest in ME Research has asked MPs to consider the following document in the next APPG for ME meeting on 15 November 2023, as there are restrictions on agenda content at these meetings and we feel that MPs should be made aware of developments and status at the centre in Norwich Research Park.
[This document is available at https://tinyurl.com/appg-for-me-november2023 ]
Invest in ME Research is a UK charity committed to advancing the understanding and treatment of myalgic encephalomyelitis (ME or ME/CFS). The charity has been actively advocating and working towards the establishment of a Centre of Excellence for ME since 2011, situated within the promising grounds of Norwich Research Park.
In August 2022, we submitted a proposal to the DHSC/UKCRC Research Working Group, outlining what we believe is the most efficient, cost-effective, and forward-thinking approach to enhancing our knowledge of the aetiology of ME and developing treatments. This proposal represents a significant step toward building capacity and expertise in the field. This document contains the relevant extract taken from that document.
Given the current limitations on adding agenda items to APPG for ME meetings, we believe it is essential to draw your attention to our proposal independently.
We believe the establishment of a Centre of Excellence for ME at Norwich Research Park aligns perfectly with the APPG's mission to facilitate change in the ME landscape.For more detailed information and insight into our proposal, we encourage you to review the accompanying document, 'Executive Summary for MPs‘ regarding the Centre of Excellence for ME development, which can be accessed at this link -
https://tinyurl.com/UK-Centre-of-Excellence-for-ME .For additional inquiries or to discuss this proposal in more detail, please feel free to reach out to us directly,
Kathleen McCall
Chairman Invest in ME Research