The charity's International ME Conference for 2007- #IIMEC2 - was our
second annual international conference for ME and was
held on over two days - 1st and 2nd May, 2007 in London
and began ME Awareness Month 2007.
The conference was attended by presenters and delegates from 12 countries,
from Europe, USA, Canada and even South Korea.
The charity decided to make this a two-day conference - with themes for professionals on one day
and patients on the second day.
This also allowed increased networking opportunities and potential for one of the charity's main objectives
- international collaboration between researchers.
The conference carried full CPD-accreditation.
1st May - ME Awareness & Support Conference Day - consisted of a series of group presentations and was designed for healthcare professionals, people with ME and their carers and ME Support groups with a view to working together.
2nd May - Professionals Conference Day - was the formal presentation day for healthcare professionals - doctors, paediatricians, nurses, researchers, students etc. as well as people with ME and their carers and ME support groups.
The conference aimed to educate and provide current information to healthcare professionals (GPs, paediatricians, nurses) and researchers and to educate the media and politicians involved in establishing news or debate regarding healthcare.
The series of lectures focused on treatments, care and medical information and research and provided a broad range of valuable information for all.
The conference provided a chance to hear the latest news on ME from the most prominent speakers within the ME community - in ME Awareness Month 2007.
Good and useful connections were made - researchers discussing collaboration; ME Support groups discussing joint ventures and campaigns; carers and parents sharing experiences.
A wonderful atmosphere was present during both days of the conference and many travelled from afar.
The charity published its first Journal of IiME, which also served as a conference brochure, and produced a DVD of the conference (though later the videos of the presentations have been made available here online).
Click on sections below
Conference Report
The IiME ME/CFS Conference for 2007 was held on over two days - 1st and 2nd May, 2007 in London and began ME Awareness Month 2007.
The conference carried full CPD-accreditation (12 points credit for the two days - 6 points per day).
1st May - ME Awareness & Support Conference Day consisted of a series of group presentations and was designed for healthcare professionals, people with ME and their carers and ME Support groups with a view to working together.
2nd May - Professionals Conference Day was the formal presentation day for healthcare professionals - doctors, paediatricians, nurses, researchers, students etc. as well as people with ME and their carers and ME support groups.
The ME/CFS Conference aimed to educate and provide current information to healthcare professionals (GPs, paediatricians, nurses) and researchers and to educate the media and politicians involved in establishing news or debate regarding healthcare.
The series of lectures focused on treatments, care and medical information and research and provided a broad range of valuable information for all.
The conference provided a chance to hear the latest news on ME from the most prominent speakers within the ME community - in ME Awareness Month 2007.
Invest in ME would like to thank all those who took part in the conference for contributing to the wonderful atmosphere which was present during both days of the conference. Many travelled from afar and the conference was a success because of the character and of all. The atmosphere at the conference showed the positive and forward-looking side of the ME community around the world.
We believe that everyone left not only with an enhanced knowledge gained from the conference but also with renewed hope for the future treatment and possible cure for myalgic encephalomyelitis. The breadth of knowledge, science and experience regarding ME, as discussed and presented at the conference, is not only impressive but also exciting.
We hope that the many contacts which were established at the conference will continue and we hope to remain in contact with as many of you as possible. To see renowned experts on ME discussing with each other and forming or re-enforcing collaborative efforts was reward enough for hosting the conference. To turn into reality our efforts to form a world alliance of campaigning ME Support organisations was also justification for the conference.
And then there were the presentations from our distinguished speakers. An amazing amount of knowledge was presented showing the organic nature of myalgic encephalomyelitis. Invest in ME published its first Journal of IiME, which also served as a conference brochure. Invest in ME produced a DVD of the conference. The complete presentation materials are available and included on the conference DVD. These were later moved to our You Tube channel.
Conference Presentations from IIMEC1
Norman Lamb MP
Member of UK Parliament for Norwich NorthKynote Speech
Norman Lamb MP - MP for Norwich North
Norman Lamb entered Parliament at his second attempt in 2001, gaining this seat from the Conservatives.
Norman Lamb read law at the University of Leicester. He worked for Norwich City Council as a senior assistant solicitor before joining Norfolk solicitors Steele and Co., where he became a partner and head of the firm's specialist Employment Unit.
He worked for a year as a Parliamentary Assistant for Greville Janner, QC, MP.
He was a member of Norwich City Council 1987-91, leading the Liberal Democrats for the last two years of his term.
He has built a strong reputation in Norfolk as a campaigner for improved health services. He has been a critic of cuts in bed numbers and has highlighted the resulting unacceptable level of cancelled operations.
As an MP his work on local issues includes adjournment debates on: orthopaedic waiting times in Norfolk; the lack of school transport services in North Norfolk; police funding in Norfolk; funding for Further Education Colleges; the provision of care for people with dementia; and coastal erosion. Norman has been Lib Dem Deputy Spokesperson for International Development (2001-02), a Treasury spokesman (2002-03), PPS (Parliamentary Private Secretary) to Charles Kennedy (2003-05) and Shadow Trade and Industry Secretary (2005-06). He was a principal author of the party's policy on Royal Mail. From March to December 2006, Norman was Chief of Staff for party leader Sir Menzies Campbell.
In December 2006 he was appointed Liberal Democrat Shadow Health Secretary. He has a particular interest in Africa: he has led Adjournment Debates on the HIV/AIDS crisis facing Africa and Asia, the controversial sale of military air traffic control system in Tanzania and the situation in the Great Lakes region of Africa.
Dr Derek Pheby
Dr Derek PhebyCase Study - Epidemiology of ME/CFS
Dr. Derek Pheby - Senior Fellow, University of Hull
Epidemiological Research and the ME Observatory plus Factors involved in the development of Severe ME
Dr Jonathan Kerr
Dr Jonathan KerrVIRAL AND HUMAN GENE EXPRESSION, DEVELOPMENT OF DIAGNOSTIC TEST, NEWS OF CLINICAL TRIALS
Dr Jonathan Kerr
Jonathan Kerr qualified in medicine from Queen’s University of Belfast (1987), and completed training as a medical microbiologist (1995). He has worked as a microbiologist in Belfast, Manchester and London, taking up post as a Consultant Senior Lecturer in Microbiology at Royal Brompton Hospital / Imperial College in June 2001, and then Sir Joseph Hotung Clinical Senior Lecturer in Inflammation at St George’s University of London in 2005. His interest in Chronic Fatigue Syndrome (CFS) began during a study of the consequences of parvovirus B19 infection, when he showed that a percentage of infected cases developed CFS which persisted for several years. He is now the principal investigator in a programme of research in CFS. This involves development of a diagnostic test using mass spectrometry, analysis of human and viral gene expression in the white blood cells, and clinical trials of immunomodulatory drugs. Dr. Jonathan Kerr and colleagues at St. George’s University of London reported in the July 27, 2005 issue of the Journal of Clinical Pathology that a preliminary study of 25 CFS patients and 25 matched healthy controls revealed abnormalities in 35 of 9,522 genes analyzed using microarray technology. Polymerase chain reaction studies showed the same results for 16 of these genes. The study, and its results, raises some important questions. The first of which pertains to the need for funding of microbiological CFS research. He leads a group of 5 scientists at St George's.
His research on gene expression has resulted in several published papers – including evidence of 7 distinct sub types of ME/CFS.
Dr. Kerr also runs a ME/CFS research program. He studied the consequences of parvovirus B19 infection in ME/CFS and showed that a percentage of infected cases developed ME/CFS which persisted for several years. He has reported 88 human genes whose dysregulation is associated with CFS, and which can be used to derive genomic CFS subtypes which have marked differences in clinical phenotype and severity.
Other Links
Professor Kenny De Meirleir
Director of the Human Performance Laboratory and Fatigue Clinic, Vrije Universiteit BrusselsTREATMENTS FOR ME/CFS INTEGRATIVE & COMPLIMENTARY MEDICINE
Professor De Meirleir is a professor of Physiology and Internal Medicine at Free University of Brussels in Belgium. He is co-editor of Chronic Fatigue Syndrome: A Biological Approach, co-editor of the Journal of Chronic Fatigue Syndrome, and reviewer for more than 10 other medical journals. Dr. De Meirleir was one of four international experts on the panel that developed the Canadian Consensus Document for ME/CFS. He assesses/treats 3,000 to 4,000 ME/CFS patients annually. Professor Kenny L. De Meirleir, MD received his medical degree at Vrije Universiteit Brussel, Magna cum laude. His research activities in Chronic Fatigue date back to 1990. His other research activities in exercise physiology, metabolism and endocrinology have led to the Solvay Prize and the NATO research award. He is director of the Human Performance Laboratory and Fatigue Clinic at the Vrije Universiteit Brussel, as well as consultant in the Division of Cardiology and director of the cardiac rehabilitation program at Vrijie Universiteit Brussel.
A Model ME/CFS Clinic - The CFS Clinic
Annette WhittemoreWhittemore-Peterson Institute, Nevada, USA
Whittemore Peterson Institute for Neuroimmune Diseases, Reno, Nevada, USA
Founder and President of the Whittemore Peterson Institute for Neuroimmune Diseases, Reno, Nevada, USA.
The Institute is located on the medical campus of the University of Nevada.
Its mission is to serve those with complex neuro-immune diseases such as ME/CFS,
viral induced central nervous system dysfunction and fibromyalgia. Annette Whittemore
graduated in Elementary and Special Education at the University of Nevada and taught
children with neuro-cognitive deficits, such as those found in autism, ADD, and learning
disabilities. As the president and director of the current operations at the Institute
Annette supports the basic and clinical research program, and actively recruits physicians
and other support personnel for the Institute.
Dr Dan Peterson
Biomedical Research into MEWhittemore-Peterson Institute, Nevada, USA
Dr Daniel L. Peterson, Whittemore Peterson Institute for Neuroimmune Diseases, Reno, Nevada, USA
Daniel L. Peterson, M.D., is an internist in Incline Village, Nevada and recognized medical expert on CFS/ME. Dr. Peterson is founder of Simmaron Research, and serves on its Scientific Advisory Board. Dr. Peterson has devoted 25 years of his clinical career to diagnosing and caring for patients with CFS/ME and related neuroimmune disorders, and collaborating with researchers to better understand the illness. Dr. Peterson’s repository of more than 1,000 patient biological samples and records is a rich resource for research studies. His experience as both a clinician and a research collaborator provides a unique perspective on CFS/ME for developing translational science.
With over 25 years of medical practice, Dr Daniel L. Peterson has become a sought-after internist for diagnosing difficult and complex medical cases.
When several patients in Incline Village became ill with symptoms that resembled persistent mononucleosis, Daniel Peterson was one of the first physicians to recognize an outbreak of what is known as ME/Chronic Fatigue Syndrome (ME/CFS). He became a pioneering physician and researcher in understanding the biological characteristics and methods for diagnosing, managing and treating ME/CFS. He has also performed major studies of Ampligen as a treatment for ME/CFS, and studying the possible role of human herpes virus 6 (HHV-6) in CFS patients.
Dr. Peterson's experience as both a clinician and a research collaborator provides a unique perspective on CFS/ME for developing translational science.
Other Links
Dr Vance Spence
Biomedical Research into ME/CFS: Where does it go from hereDr. Vance Spence - Honorary Senior Research Fellow in the Department of Medicine,University of Dundee Medical School, UK
Dr. Spence is a graduate of the Universities of London and Dundee. He was a Principal Clinical Scientist responsible for vascular services and research and, in 1997, he rejoined the University of Dundee Medical School as Honorary Senior Research Fellow in the Department of Medicine.
Professor Malcolm Hooper
Emeritus Professor Sunderland UniversityDay 1 - Summary of “KEY FINDINGS” of Past Biomedical Research
Professor Malcolm Hooper
Professor Malcolm Hooper is Emeritus Professor of Medicinal Chemistry, University of Sunderland and chaired many of the initial Invest in ME Research International ME Conferences.
Professor Hooper is an internationally-renowned expert on ME/CFS and a tireless campaigner for patients' rights.
Professor Hooper has previously chaired Invest in ME conferences and participates in The Hooper Interviews - interviews with conference speakers at the Invest in ME Conference.
Professor Hooper graduated from University of London and had held appointments at Sunderland Technical College, Sunderland Polytechnic and the University of Sunderland,
where he was made Emeritus Professor of Medicinal Chemistry in 1993.
He has served at many UK universities as well as in India and Tanzania.
He has inaugurated links with Indian research institutions and universities and celebrated 25 years of productive
and on-going links which have,
particularly, involved the design and development of new drugs for tropical diseases and an exploration of natural
products associated with Ayurvedic medicine.
He has published some 50 papers in peer-reviewed journals in the field of medicinal chemistry together with major
reviews on the Chemotherapy of Leprosy,
the Chemistry of Isatogens. Edited one book on the Chemotherapy of Tropical Diseases.
He acted as a referee for a number of important journals and
served on one editorial board. He has served on committees of the Council for National Academic Awards (CNAA), the
World Health Organisation
(WHO) and the Science and Engineering Research Council (SERC).
Professor Hooper is a member of a number of learned bodies, including
the Royal Chemical Society, the British Pharmacological Society and the Society for Drug Research (SDR),
now renamed the Society for
Medicines Research, where he has served on the committee for 12 years and served as Chairman for 2 years.
This involved the planning
and organising of major national and international conferences. He was appointed Chief Scientific Advisor to the
Gulf Veterans Association (GVA)
and accepted by the Ministry of Defence (MoD) as their nominee on the Independent Panel established to consider
the possible interactions between
Vaccines and NAPS tablets.
He has also served on the Gulf Support Group convened at the Royal British Legion. His involvement with the GVA brought
contact with Chronic Fatigue Syndrome/Myalegic Encephalomyelitis (CFS/M.E.) and related disorders. Gulf War Illness/Syndrome
(GWI/S) has much in common
with M.E./CFS.
He is Patron of the Sunderland and South Shields M.E. Association and a member of the Newcastle Research Group,
which includes eminent
physicians and scientists performing research in to CFS/M.E., where one recent aspect has been the identification of
organochlorine pesticide poisoning
being misdiagnosed as M.E./CFS. He has addressed meetings of the Pesticide Exchange Network and consulted to the
Organo-Phosphate Information Network (OPIN).
He worked with the Autism Research Unit (ARU) at the University of Sunderland for over 20 years, leading to involvement
in biochemical studies to offer help, support and treatment for people with autism. This has also lead to research and
urine-analysis of Indolyl-Acroyl-Glycine (IAG), which is an unusual metabolite found in excess of 90% of people
examined in different groups of GWV, M.E./CFS and Organo-Phosphate (OP) poisoning sufferers. He served on the
General Synod of the Church of England from 1970 to 1980 and he is a Christian Lay Leader, Preacher and Teacher.
He is currently involved in three environmental campaigns: Toxic waste dumping, including campaign against sewage in
the sea presenting to the Select Committee on
Sewage Treatment and Disposal GWI/S, presenting to the Defence Select Committee M.E./CFS and OP/Pesticide poisoning
Other Links
Ellen Piro
President of the Norwegian ME ForeningDay 1 - NICE Guidelines - Experiences from Norway
Ellen Piro, President of the Norwegian ME Forening
Ellen Piro is the president of the Norwegian M.E. Association. In 1995 she circulated a worldwide petition to get the CFS name changed and she personally brought it to the Dublin CFS conference to urge the scientists to make a change. Recently Ellen has been involved in the investigation into the use of meningitis vaccines in Norway and New Zealand and which has ben connected with the cases of over 250 ME patients. She has also contributed to the debate on the Norwegian equivalent of the NICE guidelines.
Dr Byron Hyde
Dr Byron HydeME AND INSURANCE COMPANIES
Dr. Byron Hyde
Dr. Byron Hyde attended the Haileybury School of Mines and worked as a geophysicist. He then did premedicine in the Faculty of Medicine and University College, University of Toronto, obtaining a degree in chemistry and nutrition. He graduated in medicine from the University of Ottawa where he was the Director and Chief of the International Exchange Program for the Canadian Association of Medical Students and Interns (CAMSI). Dr. Hyde founded the International Summer School in Tropical Medicine. He interned at Hotel Dieu in Montreal, was a resident at St. Justine Hospital in Montreal and at the Ottawa Civic Hospital. He also studied in Munich at the University Kinderklinik and in Paris at the Necker Hospital for Children.
He was a research chemist at the Roscoe B. Jackson Laboratory at Bar Harbour, Maine, a leading world laboratory in immunological research. Following this, he was Chief Technician in charge of the Electron Microscope Laboratory in Toronto at the Hospital for Sick Children, followed by a similar post at the University of British Columbia. Dr. Hyde has authored a book on Electron Microscopy and two non-medical books.
Dr. Hyde has been a physician for 25 years and has performed charitable work as a physician in Laos and the Caribbean. He held the position of Chairman of the Ottawa Community Health Services Association, and is presently Chairman of The Nightingale Research Foundation. In 1984, Dr. Hyde began the full-time study of the disease process then known as Myalgic Encephalomyelitis (renamed in 1986 by Dr. Gary Holmes in the USA to Chronic Fatigue Syndrome).
He has worked exclusively with M.E./CFS patients since 1985. In 1988, Dr. Hyde organized an association and founded The Nightingale Research Foundation, dedicated to the study of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome. He has also acted as Chairman of the 1990 Cambridge Easter Symposium and of the Workshop on Canadian Research Directions for Myalgic Encephalomyelitis / Chronic fatigue Syndrome in May, 1991, at the University of British Columbia. (the above was extracted from the Nightingale Foundation.)
Other Links
Plenary Session
Questions to the speakers on Day 1 of the conference.
Annette Whittemore and Dr Dan Peterson
Interview with Professor Malcolm HooperWhittemore-Peterson Institute, Nevada, USA
Whittemore Peterson Institute for Neuroimmune Diseases, Reno, Nevada, USA
Ellen Piro and Dr Byron Hyde
Interview with Professor Malcolm HooperDay 1 of #IIMEC2
Dr Ian Gibson
Former Dean of Biological Sciences, UEA
Dr Ian Gibson is the former Labour MP for Norwich North. Dr Gibson worked at University of East Anglia for 32 years,
became Dean of the School of Biological Sciences at UEA in 1991
and was head of a cancer research team and set up the Francesca Gunn Leukaemia Laboratory at UEA.
In 2011 Dr Gibson received an honorary doctorate of civil law from UEA.
A scientist, politician and academic - Dr.Ian Gibson is uniquely qualified to comment on how science and politics have become intertwined.
Other Links
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References
Professor Martin Pall
Professor Martin Pall, Professor School of Molecular Biosciences WWAMI Program Washington State University
Dr. Pall has long-term interests in biological regulatory mechanisms. His current research is focussed on a theory he has developed on the cause (etiology) of chronic fatigue syndrome and the overlapping and related conditions of multiple chemical sensitivity, fibromyalgia, and posttraumatic stress disorder.
According to this theory, each of these is initiated by stresses that induce increased levels of nitric oxide and its oxidant product peroxynitrite, followed by a biochemical vicious cycle mechanism associated with chronic elevation of these two compounds. Symptoms of these conditions are produced by both nitric oxide and peroxynitrite and treatment should focus on downregulating this vicious cycle mechanism. Vitamin B-12 injections commonly used to treat these conditions are proposed to act through the action of one form of B-12 (hydroxocobalamin) which is a potent nitric oxide scavenger. Dozens of biochemical and physiological observations provide support for this theory. The most puzzling features of these conditions are explained by this novel theory.
Dr. Abhijit Chaudhuri
Dr. Abhijit ChaudhuriPathology of ME/CFS
Dr. Abhijit Chaudhuri
Dr Vance Spence
Vascular Aspects of ME/CFSDr. Vance Spence - Honorary Senior Research Fellow in the Department of Medicine,University of Dundee Medical School, UK
Dr. Spence is a graduate of the Universities of London and Dundee. He was a Principal Clinical Scientist responsible for vascular services and research and, in 1997, he rejoined the University of Dundee Medical School as Honorary Senior Research Fellow in the Department of Medicine.
Dr. Sarah Myhill
Dr. Sarah Myhill GPDay 2 - Treatments and Diagnosis – A GP’s Perspective
Dr Sarah Myhill - GP, UK
Dr. Myhill is a general practitioner with a particular interest in chronic fatigue syndrome. She qualified from Middlesex Hospital Medical School with honours in 1981 and has worked in the NHS and in private practice. Dr. Myhill has consulted over 100 farmers with CFS following organophosphate poisoning and 100 women with CFS following silicone poisoning either from breast implants or injection. Over the past twenty years Dr. Myhill estimates to have seen over 1,500 cases of chronic fatigue syndrome largely caused by viral infection. During the early years she reported these cases individually to the Medical Devices Agency.
Professor Kenny De Meirleir
Director of the Human Performance Laboratory and Fatigue Clinic, Vrije Universiteit BrusselsDay 2 - Treatments for ME/CFS Integrative & Complimentary Medicine
Professor De Meirleir is a professor of Physiology and Internal Medicine at Free University of Brussels in Belgium. He is co-editor of Chronic Fatigue Syndrome: A Biological Approach, co-editor of the Journal of Chronic Fatigue Syndrome, and reviewer for more than 10 other medical journals. Dr. De Meirleir was one of four international experts on the panel that developed the Canadian Consensus Document for ME/CFS. He assesses/treats 3,000 to 4,000 ME/CFS patients annually. Professor Kenny L. De Meirleir, MD received his medical degree at Vrije Universiteit Brussel, Magna cum laude. His research activities in Chronic Fatigue date back to 1990. His other research activities in exercise physiology, metabolism and endocrinology have led to the Solvay Prize and the NATO research award. He is director of the Human Performance Laboratory and Fatigue Clinic at the Vrije Universiteit Brussel, as well as consultant in the Division of Cardiology and director of the cardiac rehabilitation program at Vrijie Universiteit Brussel.
Dr Byron Hyde
Nightingale FoundationDay 2 - CFS patient and the resulting pathological findings or Case Studies / Thyroid Problems
Dr. Byron Hyde
Dr. Byron Hyde attended the Haileybury School of Mines and worked as a geophysicist. He then did premedicine in the Faculty of Medicine and University College, University of Toronto, obtaining a degree in chemistry and nutrition. He graduated in medicine from the University of Ottawa where he was the Director and Chief of the International Exchange Program for the Canadian Association of Medical Students and Interns (CAMSI). Dr. Hyde founded the International Summer School in Tropical Medicine. He interned at Hotel Dieu in Montreal, was a resident at St. Justine Hospital in Montreal and at the Ottawa Civic Hospital. He also studied in Munich at the University Kinderklinik and in Paris at the Necker Hospital for Children.
He was a research chemist at the Roscoe B. Jackson Laboratory at Bar Harbour, Maine, a leading world laboratory in immunological research. Following this, he was Chief Technician in charge of the Electron Microscope Laboratory in Toronto at the Hospital for Sick Children, followed by a similar post at the University of British Columbia. Dr. Hyde has authored a book on Electron Microscopy and two non-medical books.
Dr. Hyde has been a physician for 25 years and has performed charitable work as a physician in Laos and the Caribbean. He held the position of Chairman of the Ottawa Community Health Services Association, and is presently Chairman of The Nightingale Research Foundation. In 1984, Dr. Hyde began the full-time study of the disease process then known as Myalgic Encephalomyelitis (renamed in 1986 by Dr. Gary Holmes in the USA to Chronic Fatigue Syndrome).
He has worked exclusively with M.E./CFS patients since 1985. In 1988, Dr. Hyde organized an association and founded The Nightingale Research Foundation, dedicated to the study of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome. He has also acted as Chairman of the 1990 Cambridge Easter Symposium and of the Workshop on Canadian Research Directions for Myalgic Encephalomyelitis / Chronic fatigue Syndrome in May, 1991, at the University of British Columbia. (the above was extracted from the Nightingale Foundation.)
Other Links
Dr Jonathan Kerr
St. George’s University of LondonDay 2 - VIRAL AND HUMAN GENE EXPRESSION, DEVELOPMENT OF DIAGNOSTIC TEST, NEWS OF CLINICAL TRIALS
Dr Jonathan Kerr
Jonathan Kerr qualified in medicine from Queen’s University of Belfast (1987), and completed training as a medical microbiologist (1995). He has worked as a microbiologist in Belfast, Manchester and London, taking up post as a Consultant Senior Lecturer in Microbiology at Royal Brompton Hospital / Imperial College in June 2001, and then Sir Joseph Hotung Clinical Senior Lecturer in Inflammation at St George’s University of London in 2005. His interest in Chronic Fatigue Syndrome (CFS) began during a study of the consequences of parvovirus B19 infection, when he showed that a percentage of infected cases developed CFS which persisted for several years. He is now the principal investigator in a programme of research in CFS. This involves development of a diagnostic test using mass spectrometry, analysis of human and viral gene expression in the white blood cells, and clinical trials of immunomodulatory drugs. Dr. Jonathan Kerr and colleagues at St. George’s University of London reported in the July 27, 2005 issue of the Journal of Clinical Pathology that a preliminary study of 25 CFS patients and 25 matched healthy controls revealed abnormalities in 35 of 9,522 genes analyzed using microarray technology. Polymerase chain reaction studies showed the same results for 16 of these genes. The study, and its results, raises some important questions. The first of which pertains to the need for funding of microbiological CFS research. He leads a group of 5 scientists at St George's.
His research on gene expression has resulted in several published papers – including evidence of 7 distinct sub types of ME/CFS.
Dr. Kerr also runs a ME/CFS research program. He studied the consequences of parvovirus B19 infection in ME/CFS and showed that a percentage of infected cases developed ME/CFS which persisted for several years. He has reported 88 human genes whose dysregulation is associated with CFS, and which can be used to derive genomic CFS subtypes which have marked differences in clinical phenotype and severity.
Other Links
Dr Dan Peterson
Biomedical Research into MEWhittemore-Peterson Institute, Nevada, USA
Dr Daniel L. Peterson, Whittemore Peterson Institute for Neuroimmune Diseases, Reno, Nevada, USA
Daniel L. Peterson, M.D., is an internist in Incline Village, Nevada and recognized medical expert on CFS/ME. Dr. Peterson is founder of Simmaron Research, and serves on its Scientific Advisory Board. Dr. Peterson has devoted 25 years of his clinical career to diagnosing and caring for patients with CFS/ME and related neuroimmune disorders, and collaborating with researchers to better understand the illness. Dr. Peterson’s repository of more than 1,000 patient biological samples and records is a rich resource for research studies. His experience as both a clinician and a research collaborator provides a unique perspective on CFS/ME for developing translational science.
With over 25 years of medical practice, Dr Daniel L. Peterson has become a sought-after internist for diagnosing difficult and complex medical cases.
When several patients in Incline Village became ill with symptoms that resembled persistent mononucleosis, Daniel Peterson was one of the first physicians to recognize an outbreak of what is known as ME/Chronic Fatigue Syndrome (ME/CFS). He became a pioneering physician and researcher in understanding the biological characteristics and methods for diagnosing, managing and treating ME/CFS. He has also performed major studies of Ampligen as a treatment for ME/CFS, and studying the possible role of human herpes virus 6 (HHV-6) in CFS patients.
Dr. Peterson's experience as both a clinician and a research collaborator provides a unique perspective on CFS/ME for developing translational science.
Other Links
Professor Malcolm Hooper
SUMMARY - FUTURE STRATEGY FOR ME RESEARCH, DIAGNOSIS AND TREATMENTEmeritus Professor of Medicinal Chemistry, University of Sunderland
Professor Malcolm Hooper
Professor Malcolm Hooper is Emeritus Professor of Medicinal Chemistry, University of Sunderland and chaired many of the initial Invest in ME Research International ME Conferences.
Professor Hooper is an internationally-renowned expert on ME/CFS and a tireless campaigner for patients' rights.
Professor Hooper has previously chaired Invest in ME conferences and participates in The Hooper Interviews - interviews with conference speakers at the Invest in ME Conference.
Professor Hooper graduated from University of London and had held appointments at Sunderland Technical College, Sunderland Polytechnic and the University of Sunderland,
where he was made Emeritus Professor of Medicinal Chemistry in 1993.
He has served at many UK universities as well as in India and Tanzania.
He has inaugurated links with Indian research institutions and universities and celebrated 25 years of productive
and on-going links which have,
particularly, involved the design and development of new drugs for tropical diseases and an exploration of natural
products associated with Ayurvedic medicine.
He has published some 50 papers in peer-reviewed journals in the field of medicinal chemistry together with major
reviews on the Chemotherapy of Leprosy,
the Chemistry of Isatogens. Edited one book on the Chemotherapy of Tropical Diseases.
He acted as a referee for a number of important journals and
served on one editorial board. He has served on committees of the Council for National Academic Awards (CNAA), the
World Health Organisation
(WHO) and the Science and Engineering Research Council (SERC).
Professor Hooper is a member of a number of learned bodies, including
the Royal Chemical Society, the British Pharmacological Society and the Society for Drug Research (SDR),
now renamed the Society for
Medicines Research, where he has served on the committee for 12 years and served as Chairman for 2 years.
This involved the planning
and organising of major national and international conferences. He was appointed Chief Scientific Advisor to the
Gulf Veterans Association (GVA)
and accepted by the Ministry of Defence (MoD) as their nominee on the Independent Panel established to consider
the possible interactions between
Vaccines and NAPS tablets.
He has also served on the Gulf Support Group convened at the Royal British Legion. His involvement with the GVA brought
contact with Chronic Fatigue Syndrome/Myalegic Encephalomyelitis (CFS/M.E.) and related disorders. Gulf War Illness/Syndrome
(GWI/S) has much in common
with M.E./CFS.
He is Patron of the Sunderland and South Shields M.E. Association and a member of the Newcastle Research Group,
which includes eminent
physicians and scientists performing research in to CFS/M.E., where one recent aspect has been the identification of
organochlorine pesticide poisoning
being misdiagnosed as M.E./CFS. He has addressed meetings of the Pesticide Exchange Network and consulted to the
Organo-Phosphate Information Network (OPIN).
He worked with the Autism Research Unit (ARU) at the University of Sunderland for over 20 years, leading to involvement
in biochemical studies to offer help, support and treatment for people with autism. This has also lead to research and
urine-analysis of Indolyl-Acroyl-Glycine (IAG), which is an unusual metabolite found in excess of 90% of people
examined in different groups of GWV, M.E./CFS and Organo-Phosphate (OP) poisoning sufferers. He served on the
General Synod of the Church of England from 1970 to 1980 and he is a Christian Lay Leader, Preacher and Teacher.
He is currently involved in three environmental campaigns: Toxic waste dumping, including campaign against sewage in
the sea presenting to the Select Committee on
Sewage Treatment and Disposal GWI/S, presenting to the Defence Select Committee M.E./CFS and OP/Pesticide poisoning
Other Links
IIMEC2 Day 2 Plenary Session
PANEL DISCUSSION: THE WAY FORWARD FOLLOWED BY OPEN FORUMQuestions from the audience at IIMEC2 Day 2
Questions to the speakers on Day 2 of the conference.
Interview Dr Ian Gibson MP and Sarah Vero
with Professor Malcolm HooperFollowing the Gibson Inquiry into ME
The Gibson Inquiry 2006
Dr. Ian Gibson MP for Norwich North called for an independent inquiry into Myalgic Encephalomyelitis and set up a working group.
Read more of the Inquiry into the
status of status of
CFS/M.E. and M.E. and
research into research into
causes and
treatment
- click here
Dr Nigel Speight
Paediatrics and MEDay 2 - Paediatrics and ME
Dr Nigel Speight
Dr Nigel Speight was a consultant paediatrician in Durham for over 25 years. He has seen a large number of cases of childhood ME in his own area and has frequently been called on to support cases of where children have been treated poorly by social and healthcare services. He has played a major role in rescuing children from care proceedings and is well qualified to comment on the state of treatment of ME patients. Dr Speight presented at the 2nd Invest in ME Research International ME Conference 2007 in London and gave the pre-conference dinner keynote speech at the 9th Invest in ME Research International ME COnference in 2014. He is considered to be one of the most experienced ME consultants in the UK.
Further Information
Read more of the The General Medical Council - Dr Nigel Speight
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Our Sponsors for IIMEC2
Invest in ME wish to thank the following organisations for again helping us in sponsoring a speaker for the 2nd Invest in ME International ME Conference 2007.
The Irish ME Trust
The Irish ME Trust has sponsored a speaker at all of our conferences and we would like to thank them for their continued support.