Thanks to extraordinary efforts, visionary ideas,
tremendous generosity and sheer hard work and dedication patients and their
carers and families and friends have helped initiate the foundation project
for a start on biomedical research into ME, beginning the first element in a
proposal to establish an examination and research facility for ME in the UK.
So, what next?
After the conference we will set out the next
plans for implementing our proposal for an examination and research facility
and have more details of the foundation project.
We want
severely affected patients to be involved in studies.
We have
more research proposals which we have discussed already and hope to be able
to propose.
We shall
discuss with our colleagues in the LDIFME campaign.
There are
already promising signs that we can make further progress.
For a day
or a week, though, all of our supporters should congratulate themselves on
achieving this first step. Well done - and thank you.
More
details will appear here shortly and in our newsletter.
Let's Do It For ME
Let's do it for ME! is a patient-driven campaign
to raise awareness and vital funds for
a UK
centre of excellence for translational biomedical ME research,
clinical assessment, diagnosis and treatment for patients,
training and information for healthcare staff, based around the
Norwich Research Park in the UK and aiming to work
collaboratively with international biomedical researchers.
#EMERG24 - A full in person meeting for the European ME Research Group (EMERG) will
take place at Hinxton Hall on the Wellcome Genome Campus near Cambridge, UK.