The conference was given the maximum 6 points CPD (Continuous Professional Development) accreditation by the Royal Colleges. The
conference provided a chance to hear the latest news on
ME from the most prominent speakers within the ME community - on ME Awareness Day,
in ME Awareness Month 2006.
Invest in ME hoped that this conference would highlight the need for publicly funded biomedical
research which would lead to treatment and a cure for this devastating illness -
an illness which is about 5 times more common in the UK than HIV/AIDS.
Below there are links to
details of the presenters.
Details of
the ME Conference 2006
Here are details of the ME Conference. If you have problems
contact us at meconference2006.
Venue
The venue was One Birdcage Walk, Westminster, London -
click here
for a map reference or here for a
360 Virtual Tour.
Speakers
Professor Malcolm
Hooper |
Emeritus
Professor of Medicinal Chemistry, University of Sunderland |
See details |
Dr. Byron Hyde |
Nightingale
Research Foundation |
See details |
Dr.Bruce Carruthers |
Principal Author
of the Canadian Guidelines |
See details |
Jane Colby |
Former Head Teacher; Executive
Director of Tymes Trust |
See details |
Dr. Jonathan Kerr |
Sir Joseph Hotung Senior Lecturer in
Inflammation,
St George's University of London |
See details |
Professor Basant Puri |
Consultant at
Hammersmith Hospital |
See details |
Dr. Ian Gibson MP |
MP for Norwich
North and chair of the Proposed Inquiry into ME |
See details |
Conference Programme
Activity/Presentation |
Speaker |
|
|
Welcome/Opening Address |
Invest in ME |
Key Note: The Independent
Parliamentary Inquiry
Update on progress made and
outcomes. |
Dr. Ian Gibson MP |
Definitions and Aetiology _
The importance of diagnostic
criteria. |
Dr. Bruce Carruthers |
|
Summary of “Key Findings” of past
bio‑medical research. |
Professor Malcolm Hooper
|
Children and Education:
Incidence, clusters and specific
problems of youngsters with M.E. |
Jane Colby |
|
The
epidemiology, definitions and techniques of investigation of the ME
and CFS patient and the resulting pathological findings |
Dr. Byron Hyde |
|
Viral and Human Gene
Expression, development of diagnostic test,
news of clinical trials |
Dr. Jonathan Kerr |
Lipid Neuroscience - an overall
picture of (and links to) other treatments/research |
Professor Basant Puri
|
The Way Forward followed by Open
Forum
Proposed topics for educational
support and future research with reasons why. |
Dr. Bruce Carruthers |
Professor Malcolm Hooper |
Dr. Byron Hyde |
Dr. Jonathan Kerr |
Jane Colby |
Prof. Basant Puri |
Ad-hoc discussions in Marble Hall |
|
Why a
Conference?
Invest in ME is about education,
publicising
and lobbying regarding the treatment of ME sufferers in the UK and regarding
the need for public funding of biomedical research into ME.
In recent years there are
many of us who feel that ME Awareness Week (as it has become) has passed with
too little public attention gained, little co-ordination of events and limited
success in rallying people behind our cause, all of which has produced little or
no long term benefit for the ME sufferers.
Therefore, we considered how
we could complement all the on-going good efforts and attract a much larger
interest from professionals in the medical, healthcare, academic and media
worlds that could also raise the profile politically. Since IiME had forged
links with academia and some politicians, we thought that a public event to
expose current activities to a wider audience would be of benefit to all.
We believe it is important to provide a possibility for
people within government, health departments, social services and schools to be
able to be informed of the true nature of ME. By attracting some of the most
powerful speakers possible, at one conference, we believed we could gain much
publicity and awareness of ME as possible.
Why London?
We chose
London to attract major presenters, to allow the possibility for known professionals
and researchers to attend and focus attention on raising awareness in the heart
of power in the UK - Westminster.
Why ME Awareness Month?
We should focus on more than
one day (and on more than one week) in the year for an illness which is more prevalent than people would
imagine. Invest
in ME are calling on the ME community to create a month of campaigning for ME, with one
event following another, up and down the country? Look at the recent successful
McMillan campaign for Cancer. That lasted a whole month and had a campaign
(Think Pink) which attracted much publicity and, more importantly, huge funds.
Invest in ME
wished to see and
support many events during the month of May to extend the visibility of this
“Hidden National Scandal” to increase public awareness and fund-raising
opportunities
Why 12th May?
12th May is
the anniversary of Florence Nightingale's birthday (who
is thought to have
suffered M.E. on her return from the Crimea)
and is the focal point of ME
Awareness Month 2006.
|