Invest in ME are
profoundly disappointed by the continuing indifference
to ME which the response to the e-petition from the
Prime Minister’s office has shown.
The perfunctory
response provides further confirmation that the current
government has no intention of taking seriously the
plight of people affected by ME.
The lack of
attention which the government continues to display toward
ME is evident in the uninformed and superficial
response.
From the tardiness
of the reply (provided over a month after the IiME
ME/CFS conference in London was held) to the lack of any
real policy being evident toward ME the prime
minister’s office has demonstrated that the
government has no interest
in engaging with the patient community and is devoid of
ideas as to how ME can be treated.
Invest in ME have
responded to the Prime Minister. Our letter has been
emailed and sent via Post to the Prime Minister.
A copy of our
letter can be found below via the links provided.
Invest in ME have
requested a meeting with the Prime Minister and are
willing to
organise a
representation to visit him.
We have also
offered to arrange for the Prime Minister to visit a
severely affected person with ME in the hope that he
would see for himself the desperate needs of people with
ME in this country.
We invite all
friends of IiME to contact the Prime Minister’s office
and voice their opinion.
Meanwhile Invest
in ME have had a response from the Chief Medical Officer
to our letter to him on ME Awareness Day. We hope to be
setting up a meeting with his policy team in the near
future.
Letter to the Prime Minister from Invest in ME
The response from Invest in ME to the Prime Minister
is available here -
